Dr Natalie Bradford
(Queensland University of Technology Institute of Health and Biomedical Innovation)
In addition to the potential for premature death, children with brain cancer and their families also deal with potential long-term side effects including seizures, cognitive deficits, pain and fatigue.
For parents and carers, balancing the needs of an acutely unwell child along with the competing demands of family life is a tension not well understood.
These aspects of the childhood cancer experience are often neglected in the healthcare system – and yet, they have serious and profound impacts on kids and families.
A/Prof Bradford will conduct desperately needed research into the diverse needs of paediatric brain cancer patients and their families during and after treatment, as well as the service models which can provide tailored and effective interventions to meet those needs.
Vitally, this research will involve extensive consultation with patients and families, plus interdisciplinary health care teams, service managers and policy makers.
The potential outcomes
Evidence gained during the consultation process will be used to inform the development and implementation of sustainable services for paediatric brain cancer patients and families to address unmet need, improve equity of access and reduce variation in long-term health outcomes.
The research team
A/Prof Natalie Bradford
Queensland University of Technology – Cancer and Palliative Care Outcomes Centre, Principal Research Fellow, NHMRC Investigator Fellow
Dr Stuart Ekberg
Queensland University of Technology – School of Psychology & Counselling, Senior Research Fellow (ARC Discovery Early Career Researcher Award)
Dr David Brain
Queensland University of Technology – Australian Centre for Health Services Innovation (AUSHSI), Research Fellow
Dr Erin Pitt
Senior Research Assistant, Cancer and Palliative Care Outcomes Centre
Dr Kate Young
Cancer and Palliative Care Outcomes Centre, Research Fellow
Dr Timothy Hassall
Children’s Health Queensland Hospital and Health Service, Oncologist, CBCC Program Director, Clinical Investigator
Ms Haley Bell